So far this week I have had a complete skeletal x-ray, a kidney function test. Before Friday I still have to have a pulmonary function test and an echo cardiogram. all on different days.
Why cant hospital departments get their heads together when booking appointments I am shattered.
I have to be in Hospital for 9.15am on Monday bed or no bed. the care team will make sure when my chemo is finished my room will be free.
Wednesday 25 February 2009
Sunday 22 February 2009
Transplant
Well, I have the dates for my Stem Cell Transplant. It is the 4th Of March 2009. But before that can happen during this week I have to have a Kidney Function Test. An X-ray of my chest and a Heart trace.
Then i can enter hospital on the 2nd of March and be greeted with a massive dose of Chemo to kill all my existing Stem Cells and the rest of my Cancer. I get transferred by Ambulance to the RVI at Newcastle on the 4th to receive my cells.
Transferred back to Sunderland the same day, and prepare for my 3week stay in hospital in solitary confinement. (Or is it a sterile room).
I am on my way back to good health!!! yippee
Then i can enter hospital on the 2nd of March and be greeted with a massive dose of Chemo to kill all my existing Stem Cells and the rest of my Cancer. I get transferred by Ambulance to the RVI at Newcastle on the 4th to receive my cells.
Transferred back to Sunderland the same day, and prepare for my 3week stay in hospital in solitary confinement. (Or is it a sterile room).
I am on my way back to good health!!! yippee
Friday 13 February 2009
In The Bag
Well at the begining of the week I thought this wasn't going to happen. but, on Wednesday and Thursday, we got enough cells for one transplant and one in the bank for the future.
So all I have to do now is wait, I see my spacialist on Tuesday I hope we will have some idea of dates for the future.
Feel relaxed now for a change.
So all I have to do now is wait, I see my spacialist on Tuesday I hope we will have some idea of dates for the future.
Feel relaxed now for a change.
Monday 9 February 2009
Feeling Flat
On Tuesday last week I was taught how to give myself an injection of Growth Hormone that I need to stimulate the growth of my Stem Cells before their harvest next Monday. What a horrible feeling when you have a needle held against your skin.
On Friday last week I attended my blood clinic as usual. Everything went well untill I was told that I was Neutrapenic. (very low or next to no immune system). I had two options available to me. 1. go staraight home and avoid crowded places, pubs, shops and any one who might have an infection. or 2. Don't go home and be admited to the sterile ward that i left on Saturday the week prior. There was no choice, I went home.
At my Stem cell Harvest today, I had my bloods taken again. This time I was told that my CD34 count (??) was low and they would not have the harvest at this point. I had to double the dose of my Growth Hormone Injections and return at 8.00am on Wednesday 11th. Only two days time but i cant help feeling flat, crap. let down......
On Friday last week I attended my blood clinic as usual. Everything went well untill I was told that I was Neutrapenic. (very low or next to no immune system). I had two options available to me. 1. go staraight home and avoid crowded places, pubs, shops and any one who might have an infection. or 2. Don't go home and be admited to the sterile ward that i left on Saturday the week prior. There was no choice, I went home.
At my Stem cell Harvest today, I had my bloods taken again. This time I was told that my CD34 count (??) was low and they would not have the harvest at this point. I had to double the dose of my Growth Hormone Injections and return at 8.00am on Wednesday 11th. Only two days time but i cant help feeling flat, crap. let down......
Sunday 1 February 2009
Been There and Done It!
I have been in Hospital for three days not four as I was expecting (there is always a bonus). It took ages on Thursday to start the treatment but at 4.00pm start it they did. Another line was inserted to my hand and a piggyback (two outlets) attached. as well as a piggyback attached to my Hickman line.
Now this is where it gets confusing. one of the bags had to go through in 22hours, one in 5hours, one in sixhours and one in 2hours. Each time the machine alarm went off i buzzed a nurse and they attached another bag.
Anyway on Saturday after being hooked up to this drip machine for 48hours the nurse remooved the last bag and the line in my hand. flushed my Hickman line and said he would return in about an hour. He didn't but a nice young nurse called Kelly did. she took blood from my Hickman and flushed it again and said when the results come back they would call the doctor.
Doctor arrives at 4,00pm saturday, asks if i feel dizzy or any feelings of being sick. I answer no to both questions. Good he said. How would you like to go home. Just need some anti-biotics from pharmacy then off you go. (good job home is on speed dial on my mobile).
Now this is where it gets confusing. one of the bags had to go through in 22hours, one in 5hours, one in sixhours and one in 2hours. Each time the machine alarm went off i buzzed a nurse and they attached another bag.
Anyway on Saturday after being hooked up to this drip machine for 48hours the nurse remooved the last bag and the line in my hand. flushed my Hickman line and said he would return in about an hour. He didn't but a nice young nurse called Kelly did. she took blood from my Hickman and flushed it again and said when the results come back they would call the doctor.
Doctor arrives at 4,00pm saturday, asks if i feel dizzy or any feelings of being sick. I answer no to both questions. Good he said. How would you like to go home. Just need some anti-biotics from pharmacy then off you go. (good job home is on speed dial on my mobile).
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