I usually am a late night early morning type of bloke, but today i didn't get out of bed until nearly 10.00am. Strange for me as my days usually have two 6.00 o'clock's in them.
My energy seemed very low, my head seemed to be someone else's (if you can understand that).
It felt as though my eyes were mine but as i walked my body wasn't responding and when it did it was a little behind me.
I even had to lie down this afternoon to recahrge my batteries. which isn't something i am used to doing. My back has been acheing for a couple of days, no great pain but just a niggle
Sunday 28 September 2008
Saturday 27 September 2008
My Journey so Far
It all started i reckon about 3 years ago. i was refered to hospital by my GP due to the fact i have a border line Thyroid problem. with other presenting problems of fatigue and general tiredness.
After a lot of alterations in the dosage of Thyroxine i had been taking and my constantly saying to the Doctors i feel no different now to the day that i fisrt walked into the clinic. Finally someone listened to me.
I was reffered upto Heamotology, where i was told that they would screen my blood for a complete test of possible causes for the fatigue. And so they did, but i recieved a call withing one week to go and 'Have a chat'. I was told that i had something called Myeloma. (until that point i had never heard of it let alone knew it was a condition). A Cancer he continued not a particularly good cancer it isn't curable but it is controlable to a point...
The consultant may as well have been speaking a foreign language now, because all i heard was cancer and not curable. however, i was told of an appointment for a biopsy that i should attend the next day, and i was left to make an appointment for a complete body x-ray at the x-ray dept on the way out.
All this duly done (though i still don't know how) i went off to tell my wife and family. it was the hardest thing that i have ever had to do in my life. I live with my wife (commonly known as the witch, because of her laugh) and my 15yr old daughter. my 26yr old daughter lives with her boyfriend some 200 yrds away from us. So you can say we are sort of a close family.
They were as devastated as i was, tears all around i think. lot's of hugs and kisses and promises. that was on April 28th 2008 i remember it all too well.
i am using this blog to try and make sense of my journey and of my condition. if you would like to chip in or out or dip i and aout then feel free to do so.
To date i have started a combination treatment CTD which has left me tired and moody. I know they are side affects so not too concerned except i am not one for grouchy normally. But can't help it at the moment.
After a lot of alterations in the dosage of Thyroxine i had been taking and my constantly saying to the Doctors i feel no different now to the day that i fisrt walked into the clinic. Finally someone listened to me.
I was reffered upto Heamotology, where i was told that they would screen my blood for a complete test of possible causes for the fatigue. And so they did, but i recieved a call withing one week to go and 'Have a chat'. I was told that i had something called Myeloma. (until that point i had never heard of it let alone knew it was a condition). A Cancer he continued not a particularly good cancer it isn't curable but it is controlable to a point...
The consultant may as well have been speaking a foreign language now, because all i heard was cancer and not curable. however, i was told of an appointment for a biopsy that i should attend the next day, and i was left to make an appointment for a complete body x-ray at the x-ray dept on the way out.
All this duly done (though i still don't know how) i went off to tell my wife and family. it was the hardest thing that i have ever had to do in my life. I live with my wife (commonly known as the witch, because of her laugh) and my 15yr old daughter. my 26yr old daughter lives with her boyfriend some 200 yrds away from us. So you can say we are sort of a close family.
They were as devastated as i was, tears all around i think. lot's of hugs and kisses and promises. that was on April 28th 2008 i remember it all too well.
i am using this blog to try and make sense of my journey and of my condition. if you would like to chip in or out or dip i and aout then feel free to do so.
To date i have started a combination treatment CTD which has left me tired and moody. I know they are side affects so not too concerned except i am not one for grouchy normally. But can't help it at the moment.
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