Thursday the 18th saw yet another appointment at clinic for me. For some reason this time I was very anxious about it. No reason to be as my consultant said. My hb was good my red and blood cells were good and stable. My immune system was still low and I should avoid infection and if I did get an infection ring my team straight away. The best news is my paraproteins are still untraceable. No sign of the Myeloma. Yippee!!!
Now I start a week of appointments for the Diabetes. On Wednesday I see the Dietitian, who no doubt will tell me to loose weight and stop eating cakes, biscuits and sweets. and eat more fruit veg and exercise more. Then on Monday the 29th I get my eyes scanned and feet checked. Oh great joy.
Still bouncy bouncy happy though just like tigger xx
Monday, 22 November 2010
Tuesday, 2 November 2010
Onset of Type 2 Diabetes
The results of my glucose tolerance test shows that I have the onset of Type2 Diabetes. I have had an app with a nurse that runs the diabetic clinic at my GP practice. She advised that I avoid fast sugars, such as cakes, sweets biscuits all the stuff that we all like. Concentrating on the food stuff in the carbohydrate range and protein ranges. The kind of stuff we don't like such as more vegetables more fruit and white meat such as chicken also some fish courses.
I was also told that appointments would be made for me to have my eyes and feet checked and another one for me to see a dietitian to advise me in the way of eating. Oh great joy!!
I am off to the bookies now going to put a bet on..... I have a touch of Asthma(though it doesn't really bother me), a thyroid problem and Myeloma now they have said Type 2 diabetes. So the bet is can i get pregnant by Christmas.
I was also told that appointments would be made for me to have my eyes and feet checked and another one for me to see a dietitian to advise me in the way of eating. Oh great joy!!
I am off to the bookies now going to put a bet on..... I have a touch of Asthma(though it doesn't really bother me), a thyroid problem and Myeloma now they have said Type 2 diabetes. So the bet is can i get pregnant by Christmas.
Wednesday, 29 September 2010
Glucose Tolerance Test
My glucose tolerance test came around quickly. I had to fast from 8pm last night until my test finished around 10.45 this morning.
The nurse took my blood then made me drink what tasted like liquid sugar then asked me to wait in the waiting room for two hours until she next took my blood. I asked why wait so long. Its to make sure you just sit and don't do any exercise or work off the glucose while you are working.
Sitting in a doctors surgery for two hours isn't much fun. coughs colds, splutters moans and groans. I wonder if she knew about my compromised immune system. You get some funny looks as people go in and out of the surgery and your name isn't being called out.
All I have to do now is wait for the results. Another week of waiting for results.
The nurse took my blood then made me drink what tasted like liquid sugar then asked me to wait in the waiting room for two hours until she next took my blood. I asked why wait so long. Its to make sure you just sit and don't do any exercise or work off the glucose while you are working.
Sitting in a doctors surgery for two hours isn't much fun. coughs colds, splutters moans and groans. I wonder if she knew about my compromised immune system. You get some funny looks as people go in and out of the surgery and your name isn't being called out.
All I have to do now is wait for the results. Another week of waiting for results.
Thursday, 23 September 2010
Another Hurdle
I am still going to the gym. my stamina is still increasing. However, my walking distance isn't bad but is still not great. my right leg and hip still aches and my right foot still scuffs when I walk, but progress is being made.
I saw my consultant today. He tells me that my bloods are picking up nicely. the platelets are OK, white and red cells are picking up. My Neutrophills are still low and I am still vulnerable to infections and should be careful. the good news is that my Paraprotien is still un-traceable so I have another clear month.
The hot flushes I have been suffering have been increasing and often have three or four in a day. I have experienced some bad ones that seem to take it out of me I have to sit for a while to recover. My care team have tested me and its definitely not to do with my Myeloma and suggested I talk to my GP.
The tests have been taken more blood believe it or not. i have had two sets of them and now I have to have another fasted Glucose Tolerance Test the GP tells me that I am in a pre-diabetic state. More tablets perhaps who knows but I am still smiling.
I saw my consultant today. He tells me that my bloods are picking up nicely. the platelets are OK, white and red cells are picking up. My Neutrophills are still low and I am still vulnerable to infections and should be careful. the good news is that my Paraprotien is still un-traceable so I have another clear month.
The hot flushes I have been suffering have been increasing and often have three or four in a day. I have experienced some bad ones that seem to take it out of me I have to sit for a while to recover. My care team have tested me and its definitely not to do with my Myeloma and suggested I talk to my GP.
The tests have been taken more blood believe it or not. i have had two sets of them and now I have to have another fasted Glucose Tolerance Test the GP tells me that I am in a pre-diabetic state. More tablets perhaps who knows but I am still smiling.
Saturday, 31 July 2010
Still Clear
I have been having some flushes recently, starting at my head and running down my chest. I spoke to my nurse who started me on a course of blood checks, urine checks and a heart trace which all came back clear.
The consultants registrar on Thursday didn't seemed too concerned but did say I had to call the team if they become worse or worry me more. As far as my clinic results are concerned. My platelets are up, my haemoglobin is up. My neutrophils remain low but haven't changed so that's good. Best news of all my paraprotien has remained un-traceable. So another clear month for me.
I did tell him that I was going to a gym not sure what his reply was as I was still hearing no paraprotien again this month. However I have progressed at the gym. I am now using two machines each of them for half an hour at a time. My stamina is building up, not sure about my walking or the distance I can walk yet, I still seem to wobble when I walk and my right foot still seems to scuff as I walk.
The consultants registrar on Thursday didn't seemed too concerned but did say I had to call the team if they become worse or worry me more. As far as my clinic results are concerned. My platelets are up, my haemoglobin is up. My neutrophils remain low but haven't changed so that's good. Best news of all my paraprotien has remained un-traceable. So another clear month for me.
I did tell him that I was going to a gym not sure what his reply was as I was still hearing no paraprotien again this month. However I have progressed at the gym. I am now using two machines each of them for half an hour at a time. My stamina is building up, not sure about my walking or the distance I can walk yet, I still seem to wobble when I walk and my right foot still seems to scuff as I walk.
Thursday, 15 July 2010
I Have Started To Go To The Gym
I went to the gym yesterday for the first time in I don't know how many years. The fitness instructor was very kind, he listened to all of my do's and don'ts. Then took me into the gym itself.
I used a cycle machine for about 7 minutes and a cross trainer for 11 minutes. He wouldn't let me work any longer than that for the first time. However, he did say that if I feel up to it he would suggest trying to get to the gym 3 times a week, all for short sessions like yesterday. The sweat was pouring out of me, but I did it.
I am a little achey this morning but much better than I thought I would be. I am aiming to get there tomorrow energy permitting.
I used a cycle machine for about 7 minutes and a cross trainer for 11 minutes. He wouldn't let me work any longer than that for the first time. However, he did say that if I feel up to it he would suggest trying to get to the gym 3 times a week, all for short sessions like yesterday. The sweat was pouring out of me, but I did it.
I am a little achey this morning but much better than I thought I would be. I am aiming to get there tomorrow energy permitting.
Monday, 31 May 2010
8 Week Appointments
My Appointment with my consultant went well on Thursday. All my levels have lifted, and my paraprotiens have stayed untraceable again. He is very happy with my progress and to be honest so am I. I m now taking some exercise. Not every day, but every other day to build my stamina up. I have started walking more and have achieved some fair distance. Not quite a marathon yet but Linford Christie may be impressed. I can do one hundred yards in about 5 minutes. WOW!!!
The upshot of the appointment was all of my bloods were good my B12's weren't mentioned so they mustn't be causing a concern. And he has now put me on an 8 week appointment cycle. I must be going the right way.
The upshot of the appointment was all of my bloods were good my B12's weren't mentioned so they mustn't be causing a concern. And he has now put me on an 8 week appointment cycle. I must be going the right way.
Tuesday, 13 April 2010
UPDATE
Since my last entry I have been to see my back specialist. He told me that the problem at the base of my spine is wear and tear not much except pain relief, exercise and lose weight will help. The disc in my spine is a little more worrying. He feels the operation to put it right may be too much for me just now and unless I am in pain or discomfort all the time. He would prefer to not do it.
I went to see my Haemotologist last week too. He said he is happy with my weight and if I feel comfortable with it, he wouldn't say I needed to loose any. The conditin remains clear and I have been put onto a six weekly appointment. so good news there.
I will keep you posted.
I went to see my Haemotologist last week too. He said he is happy with my weight and if I feel comfortable with it, he wouldn't say I needed to loose any. The conditin remains clear and I have been put onto a six weekly appointment. so good news there.
I will keep you posted.
Thursday, 11 March 2010
GOOD NEWS!!!!!
It has been a while since I have posted, so here is just a quick update. I have seen the bone man now. He has had me undergo some nerve function tests. It seems that the disc that is at the top of my spine pushing against my spinal cord is causing problems for me. I will herar his outcome on the 1st of April.
My body has forgotten how to produce the vitamin B12. to compensate that, I have had to have a course of 6 B12 injections to build it all up. And possibly all I would need after the levels have picked up again are booster injections every 3 month.
Best news of all I have kept until last. The hematology consultant today said the best word that anyone can hope for. He said that I have reached REMISSION - yeah that's right REMISSION
I am floating now that's a word I so wanted to hear after all this time. Happiness for me today. Long may it continue.
My body has forgotten how to produce the vitamin B12. to compensate that, I have had to have a course of 6 B12 injections to build it all up. And possibly all I would need after the levels have picked up again are booster injections every 3 month.
Best news of all I have kept until last. The hematology consultant today said the best word that anyone can hope for. He said that I have reached REMISSION - yeah that's right REMISSION
I am floating now that's a word I so wanted to hear after all this time. Happiness for me today. Long may it continue.
Tuesday, 15 December 2009
Bone Man
I visited the Bn man last Monday 7th December. He said the damage to my spine had nothing to do with my Myeloma which is good news.
The problem seems to be skeletal which is old age, not helped by the fact my tretmnt has left me less active and unable to do much excercise. that has left the muscles in my back weak. As time goes by perhaps they will build up in time.
At least now i know why i get all of the problems
The problem seems to be skeletal which is old age, not helped by the fact my tretmnt has left me less active and unable to do much excercise. that has left the muscles in my back weak. As time goes by perhaps they will build up in time.
At least now i know why i get all of the problems
Tuesday, 24 November 2009
Someone listened to me rant
Someone must have listened when i went to my last clinic appointmentt. The consultant worked his magic I have now got an appointmenrt to see the bone man. 7th December
December is a busy month i have Cancer clinic on the 3rd. Bone man on the 7th and bloods on the 11th at my docs. this week i have my swine flu injection too. I'm going to be like a pin cushion for two weeks.
At least someone listened and hopefully i will get sorted out now.
December is a busy month i have Cancer clinic on the 3rd. Bone man on the 7th and bloods on the 11th at my docs. this week i have my swine flu injection too. I'm going to be like a pin cushion for two weeks.
At least someone listened and hopefully i will get sorted out now.
Wednesday, 11 November 2009
Why Wouldn't She Listen
On Thursday the 5th November I went to m clinic armed with some questions I needed answering concerning my back.The stand in Registrar the 7nth i have seen since Simon moved on asked me if I has seen Mr Cross? When I said no she said thats right it said in his letter that he didn't need to see you.
I looked puzzled by this comment and she asked why so i told her. I don't see why he has said that he doesn't need need to see me, I know i have a spinal condition that doesn't need surgery but i have a lot of questions to ask about the pain the future etc.
Her reply was simple, I am not a bone expert so i can't answer your questions. I asked who can and was told Mr Cross. Who by the way i pointed out didn't want to see me. I asked if she could ring him for me instead of sending a letter. I was told I don't have time I have a room full of patients to see and I haven't read your note properly.
Imagine how that went down.... i asked why she hadn't read my notes if she was seeing me. I was told because it a busy clinic and she was running late. I asked again about my pain and my future. I was told this isn't getting us anywhere I suggest we move on and talk about your Myeloma. (PP untraceable. Neutrophills 1.3)
I told her not to be bothered it's obvious she wasn't interested in me as a patient. Her reply was you are all important. I asked her if that was the case why couldn't she ring the Bone mans secretary for me. her reply again was I am busy.
I told her if she can't be arsed then I cant give me my next appointment and told her i never wanted t see her again. She promised to ring me at 1.30 that afternoon to tell me she had contacted the bone people. she actually rang at 4.55pm. when i pointed that out she told me not to be awkward as she had had a long hard and arduous ward round and she didn't need ant grief from me.
in reception after my nurse had ran out to hold me back I broke down in tears saying she isn't listening to me she isn't bothered about me. All she wants is this room cleared.
Well a consultant rang me next day and asked if i wanted to talk to him. I went to see him armed with another list of questions. He said he couldn't answer them all, but did answer some. He offered to ring the bone man and get the answers to he rest for me. he asked me if i want him to ring me with the answers or just tell me in the next clinic. I opted for the clinic, he then asked what i wanted to do about the registrar, told him never wanted her anywhere near me again. He said he would make sure that happened.
I looked puzzled by this comment and she asked why so i told her. I don't see why he has said that he doesn't need need to see me, I know i have a spinal condition that doesn't need surgery but i have a lot of questions to ask about the pain the future etc.
Her reply was simple, I am not a bone expert so i can't answer your questions. I asked who can and was told Mr Cross. Who by the way i pointed out didn't want to see me. I asked if she could ring him for me instead of sending a letter. I was told I don't have time I have a room full of patients to see and I haven't read your note properly.
Imagine how that went down.... i asked why she hadn't read my notes if she was seeing me. I was told because it a busy clinic and she was running late. I asked again about my pain and my future. I was told this isn't getting us anywhere I suggest we move on and talk about your Myeloma. (PP untraceable. Neutrophills 1.3)
I told her not to be bothered it's obvious she wasn't interested in me as a patient. Her reply was you are all important. I asked her if that was the case why couldn't she ring the Bone mans secretary for me. her reply again was I am busy.
I told her if she can't be arsed then I cant give me my next appointment and told her i never wanted t see her again. She promised to ring me at 1.30 that afternoon to tell me she had contacted the bone people. she actually rang at 4.55pm. when i pointed that out she told me not to be awkward as she had had a long hard and arduous ward round and she didn't need ant grief from me.
in reception after my nurse had ran out to hold me back I broke down in tears saying she isn't listening to me she isn't bothered about me. All she wants is this room cleared.
Well a consultant rang me next day and asked if i wanted to talk to him. I went to see him armed with another list of questions. He said he couldn't answer them all, but did answer some. He offered to ring the bone man and get the answers to he rest for me. he asked me if i want him to ring me with the answers or just tell me in the next clinic. I opted for the clinic, he then asked what i wanted to do about the registrar, told him never wanted her anywhere near me again. He said he would make sure that happened.
Sunday, 25 October 2009
Still have pain
Well I have had another month with untraceable paraprotien in my blood which is good. But when i mentioned my back and the fact that I haven't seen the bone man, the consultant said that he would ask a Secretary to ring them. Mind you that was only after he had said he would write another letter to chase him, and i said it's ok i will ring him because i was sick of waiting.
the Secretary did ring and then rang me back. it would appear though i have pan the bone man doesn't want to see me because i have no malignancy.
how does he know that i don't want to see him.
I am in pain and have loads of Questions and am getting very angry now. someone best answer them on the 5th of November.
the Secretary did ring and then rang me back. it would appear though i have pan the bone man doesn't want to see me because i have no malignancy.
how does he know that i don't want to see him.
I am in pain and have loads of Questions and am getting very angry now. someone best answer them on the 5th of November.
Wednesday, 30 September 2009
Still No News
Well it's been forever since I told my consultant that my back was hurting. I know he sent me for the MRI but in august he told me he was referring me to the Bone Man.
Here we are just getting into October and I still haven't heard from this mysterious bone man. I do know my back hurts when I sit, stand and walk. What I don't know is what he is going to tell me that I can do to bring some relief to it.
Ho Hum, I am back at Cancer Clinic on the 8th October so watch this space as they say.
Here we are just getting into October and I still haven't heard from this mysterious bone man. I do know my back hurts when I sit, stand and walk. What I don't know is what he is going to tell me that I can do to bring some relief to it.
Ho Hum, I am back at Cancer Clinic on the 8th October so watch this space as they say.
Thursday, 10 September 2009
OUCH !!!
Well I went to hossy for my monthly blood check, I was determined to find out what the results of my MRI scan is. The scan was in June and despite me asking in the July clinic at which I was told that they can take some time but my stand in doc would chase them and let me know.
It got to August clinic and still no word, so I made my mouth go a little. This time it was my own specialist that said he would chase it and ring me. Ring me he did, but he said that rather than tell me over the phone he would tell me in clinic if we didn't meet before. but there was an unusual degenerative condition there that he could see. He would prefer a bone man to look at it.
I have spent all of August wondering what he means, what is degenerative and what spinal condition. When was the bone man going to contact me and what the heck does all of this mean. My head has been in and out of me like you wouldn't believe.
Today the heamo asked as soon as I walked in have I seen the bone doc..... no i replied should I have he hasn't contacted me. do you know what it said about your scan he asks............. no you wouldn't tell me on the phone i said. Ah.... he said. well, it looks like the disc at the top of your spine is pushed in and resting on your spinal cord and there are three discs in your lumber region that are crumbling. But the good news is it has nothing to do with your Myeloma.
Imagine my head now. What is my future. It gets harder to fight and fight. I thought being told that you have had four clear months of this Cancer I was doing well. But it looks like you are given something good then its grabbed from you and you get something bad to deal with again.
OK that's it I've had my rant
It got to August clinic and still no word, so I made my mouth go a little. This time it was my own specialist that said he would chase it and ring me. Ring me he did, but he said that rather than tell me over the phone he would tell me in clinic if we didn't meet before. but there was an unusual degenerative condition there that he could see. He would prefer a bone man to look at it.
I have spent all of August wondering what he means, what is degenerative and what spinal condition. When was the bone man going to contact me and what the heck does all of this mean. My head has been in and out of me like you wouldn't believe.
Today the heamo asked as soon as I walked in have I seen the bone doc..... no i replied should I have he hasn't contacted me. do you know what it said about your scan he asks............. no you wouldn't tell me on the phone i said. Ah.... he said. well, it looks like the disc at the top of your spine is pushed in and resting on your spinal cord and there are three discs in your lumber region that are crumbling. But the good news is it has nothing to do with your Myeloma.
Imagine my head now. What is my future. It gets harder to fight and fight. I thought being told that you have had four clear months of this Cancer I was doing well. But it looks like you are given something good then its grabbed from you and you get something bad to deal with again.
OK that's it I've had my rant
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