New Challenge MRI Results

I got sick of waiting for the Doctor to ring me with the results of my MRI scan. he said he would chase them during my last Cancer Clinic appointment, that was 6 weeks ago. It is now ten weeks since my scan.

I rang my specialist nurse Anita, who told me that the results were there but she couldn't interpret them. She would have to ring a Doctor who would get in touch with me. Simon my consultant rang me and apologised there has been some mix up and i should have been told the results sooner.

It seems that the results now show that I have something called a degenerative spinal condition. according to Simon this could be anything from Arthritis to a dissolving of the discs. It all sounds very big and horrible to me. I do have back pain, I do stumble when I walk and my hip hurts after being on my feet for a while. All of these Simon says could be factors in the condition that I now face.

Simon is refering my scan to a bone man for further analysis and has suggested I dont worry too much until we know for definate what it is that I am facing. (Easy for him to say). Well I am worried and I am thinking about it, it has been two weeks now since my conversation with Simon and the bone man still hasn't been in touch. I have a Cancer Clinic appointment on the 10th of September, if I don't hear anything before I think the big guns will come out. ITS MY LIFE AND I WANT TO KNOW WHATS HAPPENING TO ME.

Frustrating

Just when I start to think that I'm doing OK. What happens? My body slaps me in the face and tells me it isn't. Yesterday I got up at about 9.30 had breakfast and was asleep again before 10.30.

Not only that but I slept most of the day up until 7 ish in the evening. Gorr it's so frustrating to think a couple of years ago all I would have is an afternoon knap, not now my body tells me it is gonna sleep all flippin day. Ho Hum .

First full Week

Last week was my first full week at work. By full week I don't mean monday to Friday. I mean a full working day full week. 8.00 am until 5.00pm.

I thought that I was ready for it, but my body knows it isnt. So maybe it's time that i listened to it and rested for a while. So I am going back to workinf 10.00 till 5.00pm for a while. To see how I cope.

More Work

I have extended my working day from: 10am till 3pm now 10am till 5pm. I didnt think such a small increase would tire me so much but, after only three days I feel wrecked.

Ah well I suppose that it shows that my body still needs time to recover. But my finances say it's time to work, it's such a fine balance isn't it.

A Result

My consultant told me today that there are no traces of protein in my blood and there hasn't been since my Stem Cell Transplant.

I cant help feeling that I am on a high. Floating like a balloon on helium.

No MRI results though so that was a downer, but nothing is going to stop me enjoying my moment.

Wondering

Well tomorrow I get to see my consultant again. I get my blood taken, he asks how i am doing. This time I should get my MRI results. So we will wait and see.

The thing that worries me most is, both my daughters have friends that are either in Quarantine or have suspected swine flu. I need to get some info now and fast I think.

If I said I was a little scared to think what might happen if I caught it, it would be an understatement.

Waiting again

I had an MRI scan 2 weeks ago now and am waiting for the results. I suppose i will get them when i visit my consultant on Thursday. I hate the waiting and I hate the fact they don't send you any letters, just make you wait.

This weekend I ventured out on my own in my car, I drove to Stoke, only 183 mile there and the same back. But I did stay the weekend before traveling back.

I did it but really felt shattered at the end of the journey, maybe it was a little too far to drive on my own. but you gotta set your goals haven't you.

Radio Star

I was asked by the news team at Sun-FM if i would do a radio interview today. to help promote Myeloma awareness during National Myeloma awareness week.

It should be aired in the next couple of days

Tired

This weekend I have been so tired, I don't know why. I slept most of Saturday, when it came to bed time I didn't feel tired and stayed up until about 1.00am. That wouldn't have helped any.

Tuesday I was back in the chemo day unit, not to have chemo but to have a rash that I have developed looked at. It is so itchy and results in bumps under the skin when I have rubbed or scratched. The consultant thinks that I am allergic to something and gave my intravenous steroids to ease the effects. They seemed to work well but now It has returned. Going to see my own GP this week to see if they can sort it out for me.

I start the third week of work tomorrow maybe it's that, that is making me feel so tired. But I need to return to some normality. Some good news is that I have been approached by a local radio station to do a piece on air about Myeloma during national Myeloma week next week.

Back To Work

I went back to work yesterday, with the agreement of my consultant I am only working part time. I had thought that I had regained my fitness, imagine how surprised I am that I feel so tired.

It feels as though I had never been through the massive treatment that i had in March. I don't know why this surprised me i knew that it would be difficult when I returned to work. I will have to build myself up a little at a time. It's a little like taking exercise. One step at a time.

More Good News (I think)

I had an appointment with my consultant this morning. He is more than happy with my progress, he suggested that I can return to work on a part time basis with definatly no lifting.

I told him about my walking, the pains in my knees and that one foot drags sometimes causing me to stumble. After some small exercises in the consulting room. He decided to send me for an MRI scan on my spine.

So good news in one way bad in another.

Aches and Pains

I seem to be getting increased aches and pains. pain in my back, aches in my calf muscles and pains in my knees. I feel sure that the aches and pains in my knees and calf's could be to do with the exercise, but my back is worrying me.
I have an appointment with my consultant on the 21st of May, so I will chat about it then.

Sussed it out

I have sussed it out, the reason why i felt flat over the weekend. It was my cancerversarry on Friday. Yeah that's right the first anniversary of me being told that I had this blooming awful cancer.
Well at least that's sorted, now i am like Tigger, bouncy, bouncy, bouncy....... lol

Feeling Flat

I Just feel as flat as a fart today and yesterday, don't know why. I am not worried about anything I feel stronger than ever. Just must be one of them things

Happy Birthday To Me

Well it's my birthday today I am 50yrs old. To celebrate it I had to attend hospital for my routine blood tests (all turned out fine and are almost back to normal). I also had my Hickman line removed, which is quite sore now.
However, I count this as one step closer to getting better.